Monday, September 10, 2012

Moving Forward Slowly

The hospital was actually pretty quiet over the weekend.  At night the nurses actually let people sleep and wait to give meds and vitals till they're awake which is nice.  Unfortunately, Jared's new roommate is a baby and poor thing didn't sleep well last night.  So sleep is encouraged for healing but sometimes a little difficult to get.

Saturday, he had one of his three chest tubes removed.  We were warned this would be incredibly painful/uncomfortable but he toughed it out admirably.  He continues to amaze me at his strength and positive attitude.  He even remember his manners with the nurses! Boy, is he an awesome kid!

After the tube was out we let him open one of the lego sets we had brought with us as a reward.  He was very pleased.  Oh, how I love to see him smile!
Now that he's out of ICU his brothers can visit and that really cheers him up.  He asks for Amber to sit with him a minute each time too, but only a minute she gets a little grabby.
 
Normal bodily functions are finally working after much work last night.  Amazing what you take for granted, all the little muscles unused for a week and drugged with a paralitic forget how to function.

Also as of yesterday afternoon they finally figured out which med was making him throw-up.  So hopefully he can start eating more.  In the last week he's had two smoothies, three dinner rolls and a bowl of oatmeal, not exactly sufficient caloric intake.  

Beside eating more, our other goal is to take three short walks a day.  There's not much we can do about the drainage but hopefully it will slow down today and he can have the other tubes removed tomorrow.  If he can that will be a huge step forward.

Beside the obvious above, please pray that there is an opening or that the manager and I can work out an arrangement at our noon meeting today that will let us stay here till Jared is out of the hospital.  As things stand now we need to change hotels this Friday and the thought of moving is really stressing me out. 
 
Chris FB Posts:
 

Sep 10, 2012, 2:18 PM

Just received word Jared's remaining chest tubes are coming out TONIGHT! After this, he only has an IV in one hand. This is truly remarkable. Every person from the hospital is amazed at how he looks and how he is acting. A miracle if you ask me.
Jared was doing origami with a life services person at his bedside. The amount of activities and such is astounding here. They are really in tune with kids and what helps them recover and keeps their spirits up. If anyone ever needs the best care, Children's Hospital Boston is the place to be.
Keep praying!! It is working.

Sep 10, 2012, 6:05 PM

Tubes are out!! He looks and feels great.

 




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