Surgery Has Begun

Jared last ate at 10:30pm last night.  Surgery was suppose to start at 11am but it was Tuesday so they moved it to Noon.  Then for reasons we didn't want to know, things didn't start till 4pm.  During our long wait we watched one of the "Ice Age" movies (TWICE!), but Jared laughed hysterically which helped us have some good laughs too.  Then we colored RedSox pages with Jared, played with toys and snuck next door to watch a Magic Show; in which my beautiful thespian participated.  

 

After the show Jared made a friend and played "Galaga" for a while, then they finally came and got us.

Now we will be praying and waiting some more.

I will keep updating this post as we get updates.

4:00pm  Jared is sedated by IV Chris and Tina's by his side. He was very brave.  We cried.
5:00pm  First Incision made on schedule
6:30pm  Put on heart by-pass machine
7:30pm  Having trouble removing leaflet because it's so "sticky". Therefore, procedure is going slow but forward.  Most likely two to three more hours of surgery.
8:30pm  (Chris) Jared's surgery is taking longer than expected.  The "tendrils" that connect the valves to the heart wall are tough and sticky and are taking longer than thought to cut thru.  All is going well and he has had no blood products given which is a very good thing.
9:30pm  Still working on tricuspid valve.  It has caused Dr. Del Nido some trouble.  They have completed the standard ablasions for Ebstein patients.  Surgery is not going as smooth as we hoped and prayed.  Please keep praying for the surgery team and Jared, at least another two hours.
10:09pm (Chris) Surgeon is running blood thru the heart adn doing an echo to see if the cone is working.  If so, he is done.  Keep praying.
11:37 pm (Chris) Surgeon is pleased with the results of the tests. He is working his way back out, as the nurse put it. We should be meeting with the surgeon in about an hour. Praise God that everything has worked out. Keep praying, Jared has a long way to go. Thank you all for your support and prayers.
11:52 pm (Chris) Some labwork came back that concerned the surgeon. With the condition Jared's heart was in, doing what was called a Glenn procedure was a possibility. Well, after seeing everything, the surgeon decided that Jared's heart cannot handle the new pressures put upon it. The glenn procedure will help to reduce this pressure. He is going to have to go back in, put Jared back onto the heart bypass, and proceed. We are looking at a few more hours. Keep praying, this part of our boy's journey is not yet complete.
12:00 pm  Took Jared of heart/lung machine.  Thought they were done but blood work came back poor.  They are going back in to do the Glen procedure ie. re-route top half of body directly to the lungs, cone can't handle the full pressure. Another hour or more.
12:30pm  Surgery is complete.  They are closing up and we are heading over to meet with Dr. Del Nido.
1:28 am (Chris) Jared is out of surgery. The Glenn procedure and all repairs were successful. His long term prognosis is excellent. However, the next 2-3 days are critical to see how is heart responds to all the new stresses put upon it. Your continued prayers are needed. Thank you all for prayers and support. It also looks like we will be in Boston for a further 3+ weeks. We miss being home and we have a long road ahead.
3:17 am (Chris) We just left Jared. He's in good hands. He's having some bleeding from the nose/mouth. Please pray for that to stop. He's going to be kept sedated for the next 2-3 days to allow him to rest and heal from the long surgery. We are going to try to sleep some. Thank you all.